Saturday, August 13, 2011

Go. One. More.

My door is open as I write (10:11 AM). It's a rather fallish like day here in my old Kentucky home. Low humidity and a cool gentle breeze blowing. I even had my tea on the deck this morning. Nice way to start a Saturday. It's been such a hot, oppressive summer so this is a very welcome change.

What has not been so nice is how badly I've felt these past three weeks. Bad. Very bad. I'm not feeling all that great even now yet I'm feeling a tad better than I have been. I'm not even sure why I'm writing except to give family and friends an update and perhaps simply to share what I'm going through.


In addition to my Lyme protocol, I've been on a series therapy to treat CMV (Cytomegalovirus) that has reared it's ugly head once again. Think mono. CMV is a cousin to EBV or Epstein-Barr Virus, the most common cause of mononucleosis. CMV and EBV, like Lyme, also get into the nervous system as well other organs. All of this together equals a burdened and overtaxed body that needs a break. Part of the problem is that we've revved up my immune system too much. I'm having an overactive immune response and my muscles, joints and lymph nodes have been paying the price. Clearly, we've had to back off a bit. It's a rather delicate balance. And it's such a complicated and crazy process. Unless you've experienced it up close and personal; you wouldn't believe it all if I told you.

I saw my doctor earlier this week. Correction - I dragged myself to my doctor earlier this week. It was pretty evident I was feeling awful and so we discussed everything that's been happening and made adjustments to my protocol. Yet my body wants to finish out this round of CMV treatment. I'll be done with it in the upcoming week. Still onward ho with the Lyme treatment.

As unwell as I generally feel, there are these times when everything - fatigue, fever, pain, inflammation and all the other stuff - exacerbates or elevates to the worst level. Ask anyone with Lyme Disease or any chronic illness for that matter and they'll say the same.

As my friend Kathy blogs, this illness has altered everything and requires everything to be altered. What's altered for me lately is the drive to keep pressing in. It's really hard to do when you physically feel so bad and have pressed and persevered for so many years. Yet somehow, someway (Godway) I will press on. I always do. Even when I'm crawling.

Note to self: Don't stop now. Go. One. More.


3 comments:

  1. Oh honey...thanks so much for the update. I've been so worried about you. What are you doing for CMV? Would love to hear more when you are up for it. Thinking of you and praying for you constantly.

    More Tea...Less Dragging...that's my wish.

    Hold on. We'll get there. XOXOXO

    ReplyDelete
  2. michelle.....Love you girl..... praying for your strength... and healing.... sometimes.... all we can do is let God wrap his loving arms around us...... thanks for all the posts... and the honesty you express.... as friends/family we always wish we could do more... God bless you today and everyday!.... Pamela Bollinger

    ReplyDelete
  3. I can totally relate, Michelle. But you will go one more, and in the event that you can't He'll pick you up and carry you for awhile.
    Praying for you and caring very much.

    ReplyDelete